Sunday, September 6, 2009

Sudden Cardiac Arrest Association

Weesie has long QT Syndrome. She is only 2 years old and we are absolutely blessed to have had her diagnosed at age 1. There is a certain feeling of loss of control when you imagine in your darkest times ever losing a loved one to this deceptive disorder. Taking back that control for me has been joining the Sudden Cardiac Arrest Association. By the time Weesie goes to school, we need to feel confident letting her out of sight and entrusting others with her care. This is part of that proccess.

From the SCAA site:

The Sudden Cardiac Arrest Association (SCAA) is an organization singularly focused on sudden cardiac arrest. SCAA identifies and unites survivors, those at risk of sudden cardiac arrest, as well as others who are interested in being advocates on SCAA issues in their communities and beyond. Our membership is dedicated to promoting solutions to prevent sudden cardiac death, including increased awareness, immediate bystander action, public access to defibrillation (PAD), cardiovascular disease prevention, and access to preventative therapies.

SCAA is a nonprofit, tax exempt organization under section 501(c)(3) of the Internal Revenue Code. Contributions to SCAA are tax deductible.

We are governed by a Board of Directors and are forming two advisory boards: one composed of members of industries active in the area of SCA and one of physicians and scientists well known for the practice and research in the area of SCA.

By sharing information, resources and experiences in promoting policy changes and community programs, SCAA aims to prevent loss of life from sudden cardiac arrest.

Mission: To prevent loss of life from Sudden Cardiac Arrest.

Vision: To eliminate preventable deaths from sudden cardiac arrest by 2020.

Status: To access the 2008 Annual Impact Report, click here.